About: Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death

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scientific article published on 22 August 2008

Attributes	Values
rdf:type	Item
description	wetenschappelijk artikel (nl) article scientifique publié en 2008 (fr) наукова стаття, опублікована в серпні 2008 (uk) im August 2008 veröffentlichter wissenschaftlicher Artikel (de) scientific article published on 22 August 2008 (en) artículu científicu espublizáu n'agostu de 2008 (ast)
publication date	wds:Q81814253-71828040-4E8D-4434-91DE-77B6E8B0C449
publication date	2008-08-22 00:00:00Z (xsd:dateTime)
cites work	wds:Q81814253-078A3BFC-5A11-45A5-9406-AAD0B51FA802 wds:Q81814253-0AD3A680-95DC-421E-A23D-DEC3B5BBF10D wds:Q81814253-0C30A4B9-FD4E-478D-84C7-0A2C0DAF48B4 wds:Q81814253-33CCFEC0-3447-4724-93E3-AD08E7029378 wds:Q81814253-3BDB053E-0E4E-46DE-B133-797D4362AA7F wds:Q81814253-4ADDF785-C8AD-4D3C-8E36-A64B622D6B88 wds:Q81814253-4BE305FE-7CAA-41A0-9ECA-97E1615189AD wds:Q81814253-54DB0875-2A30-4841-A49E-FD15F4976983 wds:Q81814253-66D226F7-0BC3-4FDA-9DAA-18B34C8BFB75 wds:Q81814253-723910E3-4507-440B-BEEB-94295E66B6F7 wds:Q81814253-8E71E0E3-56AB-4007-BD4E-8837A8627881 wds:Q81814253-9E5F3A61-636C-41C1-A38B-E60761F04722 wds:Q81814253-A03754EF-9005-433C-B8D9-37781BAD6CC0 wds:Q81814253-AA0BA048-A034-47EA-AFDB-D0C16FFCB436 wds:Q81814253-AD731128-A89E-4EEB-BC65-F20D14E138E3 wds:Q81814253-AE9A967D-FEAB-4007-823E-A9652CF5A9D0 wds:Q81814253-DECCDCE7-7DE4-4715-9167-03FFC3399C1B wds:Q81814253-EDE69267-77B8-414C-AC37-A4C0D6CE843A wds:Q81814253-F91C2356-2388-4350-B9F3-93B264AAE508
cites work	Long QT syndrome and pregnancy The long QT syndrome family of cardiac ion channelopathies: a HuGE review Genotype-phenotype correlation in the long-QT syndrome: gene-specific triggers for life-threatening arrhythmias. Risk stratification in the long-QT syndrome. Long QT syndrome in adults. Concerns about the implantable cardioverter defibrillator: a determinant of anxiety and depressive symptoms independent of experienced shocks. Evaluating Genetic Counseling: Client Expectations, Psychological Adjustment and Satisfaction with Service Management of long QT syndrome Effect of clinical phenotype on yield of long QT syndrome genetic testing Psychosocial impact of specialized cardiac genetic clinics for hypertrophic cardiomyopathy. The congenital long QT syndromes from genotype to phenotype: clinical implications Health related quality of life and psychological wellbeing in patients with hypertrophic cardiomyopathy. Can parents adjust to the idea that their child is at risk for a sudden death?: Psychological impact of risk for long QT syndrome Cost-effectiveness of neonatal ECG screening for the long QT syndrome When I go in to wake them ... I wonder: parental perceptions about congenital long QT syndrome. [Long QT-interval syndrome and investigation of heritability: psychological reactions in three generations in one family] Parental attitudes and beliefs regarding the genetic testing of children Quality of life and psychological status of patients with implantable cardioverter defibrillators High distress in parents whose children undergo predictive testing for long QT syndrome
author name string	wds:Q81814253-11EB9054-E3DA-47AE-ABD2-F21558392702 wds:Q81814253-898FD190-D7B7-4BD6-A36B-C6D9784FAEF6 wds:Q81814253-97583CA3-4DF4-4F89-8FE3-40321DACCFBF wds:Q81814253-E7D305E6-C1F2-4CEC-95D9-FE3439B9F484
author name string	Eva Gjengedal Nina Øyen Cathrine Bjorvatn Janice Andersen
rdfs:label	Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death (en) Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death (nl)
skos:prefLabel	Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death (en) Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death (nl)
name	Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death (en) Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death (nl)
title	wds:Q81814253-1622E628-7256-40E4-85F0-2096928F364A
title	Living with long QT syndrome: a qualitative study of coping with increased risk of sudden cardiac death (en)
page(s)	wds:Q81814253-0C62C953-B713-4388-B0B6-0E5002F3975F
page(s)	489-498
instance of	wds:Q81814253-64317421-2C2C-4825-97D1-1A7D4CBCC8FE
instance of	scholarly article
main subject	wds:Q81814253-A623FA4C-8B8E-4782-99C5-5AF91E65280A
main subject	long QT syndrome
PubMed ID	wds:Q81814253-65A1265D-7A97-4BF4-A031-856FF8CAABDC
PubMed ID	http://rdf.ncbi.nlm.nih.gov/pubchem/reference/18719982
PubMed ID	18719982
published in	wds:Q81814253-8ED636B8-F346-4ACF-90A4-E6079FA8D4F6
published in	Journal of Genetic Counseling
issue	wds:Q81814253-699F7639-46FC-4E8B-AE0F-CB255CF9F102
volume	wds:Q81814253-67D257AF-4D4E-431A-9297-D49AB6FF81F6
issue	5
volume	17
DOI	wds:Q81814253-4C5CFDED-C3C8-4383-A573-32AF8DC5F9CA
DOI	http://dx.doi.org/10.1007/S10897-008-9167-Y
DOI	10.1007/S10897-008-9167-Y
is about of	https://www.wikidata.org/wiki/Special:EntityData/Q81814253
is cites work of	Experiences of health care in women with Peripartum Cardiomyopathy in Sweden: a qualitative interview study Predictors of heart-focused anxiety in patients undergoing genetic investigation and counseling of long QT syndrome or hypertrophic cardiomyopathy: a one year follow-up Health status in patients at risk of inherited arrhythmias and sudden unexpected death compared to the general population Motivation to pursue genetic testing in individuals with a personal or family history of cardiac events or sudden cardiac death Parental knowledge and attitudes toward hypertrophic cardiomyopathy genetic testing An interdisciplinary approach to personalized medicine: case studies from a cardiogenetics clinic. Is Symptomatic Long QT Syndrome Associated with Depression in Women and Men? Qualitative Analysis of Emotional Distress in Cardiac Patients From the Perspectives of Cognitive Behavioral and Metacognitive Theories: Why Might Cognitive Behavioral Therapy Have Limited Benefit, and Might Metacognitive Therapy Be More Effective? Impediments to DNA testing and cascade screening for hypertrophic cardiomyopathy and Long QT syndrome: a qualitative study of patient experiences LQTS parents' reflections about genetic risk knowledge and their need to know or not to know their children's carrier status Perceptions of an implantable cardioverter-defibrillator: A qualitative study of families with a history of sudden life-threatening cardiac events and recommendations to improve care. Making the decision to participate in predictive genetic testing for arrhythmogenic right ventricular cardiomyopathy Exploring the Discussion of Risk of Sudden Cardiac Death. Experiences of women with cardiac disease in pregnancy: a systematic review and metasynthesis How medical technologies shape the experience of illness.
is cites work of	wds:Q36216468-28EC1131-C03E-4AB9-9372-3FC40A2A8177 wds:Q39924217-AE30544D-E6B8-4991-A124-DA8F48B29989 wds:Q48044319-0044565D-C685-4996-9A37-B53839B0BBD4

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