About: Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

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scientific article published on 01 February 2008

Attributes	Values
rdf:type	Item
description	wetenschappelijk artikel (nl) наукова стаття, опублікована в лютому 2008 (uk) im Februar 2008 veröffentlichter wissenschaftlicher Artikel (de) artículu científicu espublizáu en febreru de 2008 (ast) artikull shkencor i botuar më 01 shkurt 2008 (sq) scientific article published on 01 February 2008 (en)
publication date	wds:Q58672001-F7AAA911-8278-4325-8665-88935BE54EF3
publication date	2008-02-01 00:00:00Z (xsd:dateTime)
language of work or name	wds:Q58672001-2433BC64-236A-423A-9441-AE7BF8BF8624
language of work or name	English
author name string	wds:Q58672001-01D0D87A-5703-4148-8D8C-04FA42DED5C2 wds:Q58672001-0C117DBD-D2E7-4F92-9250-B11A266105D4 wds:Q58672001-6899F3F1-FE51-4058-BEAF-A67E6FD7DC53 wds:Q58672001-81802863-A8D1-4EAC-9F0C-681BA8B24111 wds:Q58672001-94CE1B51-C62A-4417-8FFD-FC6AF868EBD7 wds:Q58672001-EBA4BC28-ED22-4937-A38E-B032EF1EFD5A
author name string	Juli Murphy David Kaufman Kathy Hudson Gail Geller Joan Scott Lisa Leroy
rdfs:label	Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (en) Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (nl) Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (sq)
skos:prefLabel	Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (en) Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (nl) Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (sq)
name	Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (en) Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (nl) Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (sq)
title	wds:Q58672001-C8332047-93B0-4983-BA38-FD4EE810DA79
title	Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion (en)
page(s)	wds:Q58672001-BB4AFDA6-AE26-434D-B174-FE1404392401
page(s)	31-39
instance of	wds:Q58672001-4C73408F-DECA-49FC-BC91-E0B4376D15AD
instance of	scholarly article
main subject	wds:Q58672001-1A90F447-329F-49CC-B5E1-D12923332520 wds:Q58672001-2D2A98F8-9FDA-44E6-A3F5-247CE6F256AA wds:Q58672001-31D5685B-E45F-4CE0-B6E5-641F5595B3EF wds:Q58672001-622654A8-F299-4E1C-819C-63C8C3B7E567 wds:Q58672001-6B59BA01-BD1A-4E54-967A-CC64E8C54D63
main subject	biobank epidemiology public opinion research ethics bioethics
PubMed ID	wds:Q58672001-079F1ED0-7E64-4DEF-8B7A-B4D3BC6CAB5B
PubMed ID	http://rdf.ncbi.nlm.nih.gov/pubchem/reference/18189289
PubMed ID	18189289
published in	wds:Q58672001-79131A0D-BFA4-4C6E-AAA6-2CDB58C223D5
published in	American Journal of Medical Genetics Part C: Seminars in Medical Genetics
issue	wds:Q58672001-3AAC784C-B33F-4796-9F9F-43768C33D786
volume	wds:Q58672001-EDB70C5E-B783-439D-A1FD-7F060AC48BC1
issue	1
volume	148C
DOI	wds:Q58672001-106F9E95-09C2-40E7-976C-A710D7754167
DOI	http://dx.doi.org/10.1002/AJMG.C.30159
DOI	10.1002/AJMG.C.30159
skos:altLabel	Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion (en)
is about of	https://www.wikidata.org/wiki/Special:EntityData/Q58672001
is cites work of	Public expectations for return of results from large-cohort genetic research Managing incidental findings and research results in genomic research involving biobanks and archived data sets Public opinion about the importance of privacy in biobank research Ethical aspects of human biobanks: a systematic review Return of individual research results and incidental findings: facing the challenges of translational science "Who owns your poop?": insights regarding the intersection of human microbiome research and the ELSI aspects of biobanking and related studies Public perspectives on informed consent for biobanking Researchers' perceptions of the ethical implications of pharmacogenomics research with children Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries Pediatric biobanks: approaching informed consent for continuing research after children grow up. Understanding of informed consent by parents of children enrolled in a genetic biobank Attitudes about the use of newborn dried blood spots for research: a survey of underrepresented parents Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment Children, biobanks and the scope of parental consent The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository Considerations in the construction of an instrument to assess attitudes regarding critical illness gene variation research Developing a policy for paediatric biobanks: principles for good practice Clarifying assent in pediatric research Engaging children in genomics research: decoding the meaning of assent in research Genetic research with stored biological materials: ethics and practice Emerging issues in paediatric health research consent forms in Canada: working towards best practices Research ethics in the post-genomic era. Attitudes of parents toward the return of targeted and incidental genomic research findings in children Community-based dialogue: engaging communities of color in the United states' genetics policy conversation Attitudes of African-American parents about biobank participation and return of results for themselves and their children Children and biobanks: a review of the ethical and legal discussion. Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study Development and Validation of the Biomedical Research Trust Scale (BRTS) in English and Spanish Sexual and gender minority youth's perspectives on sharing de-identified data in sexual health and HIV prevention research A pilot assessment of parental practices and attitudes regarding risk disclosure and clinical research involving children in Huntington disease families Genomics, Big Data, and Broad Consent: a New Ethics Frontier for Prevention Science Consent for Genetic Biobanking in a Diverse Multisite CKD Cohort Determinants of the willingness to participate in biobanking among Malaysian stakeholders in the Klang Valley Behavioral Science Research Informs Bioethical Issues in the Conduct of Large-Scale Studies of Children's Disease Risk Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey Ethics of children's participation in a Saudi biobank: an exploratory survey.
is cites work of	wds:Q28752463-AA7AB717-1126-474F-92DC-66C359359456

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