About: Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation

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article by Jean K. Mah et al published December 2008 in Neuromuscular Disorders

Attributes	Values
rdf:type	Item
description	wetenschappelijk artikel (nl) наукова стаття, опублікована в грудні 2008 (uk) im Dezember 2008 veröffentlichter wissenschaftlicher Artikel (de) article by Jean K. Mah et al published December 2008 in Neuromuscular Disorders (en)
publication date	wds:Q57712572-4FA3A226-9464-4368-AF1F-D47090949B01
publication date	2008-12-01 00:00:00Z (xsd:dateTime)
author name string	wds:Q57712572-78528D29-8E4A-4CED-B13D-EE15EC725924 wds:Q57712572-DA04CDEF-0A99-455D-BFA2-F2B6A9C1F941 wds:Q57712572-FAF8A20F-C62B-49A0-837D-FD7732E3FD0D
author name string	Deborah A. McNeil Jean K. Mah Jennifer E. Thannhauser
rdfs:label	Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation (en) Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation (nl)
skos:prefLabel	Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation (en) Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation (nl)
name	Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation (en) Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation (nl)
author	wds:Q57712572-31614D43-657B-4D5C-957E-D5E68A1CA0A0
author	Deborah Dewey
title	wds:Q57712572-BE973BB2-C251-4AAE-A846-042F69E911FA
title	Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation (en)
page(s)	wds:Q57712572-38E75DA7-0344-4D32-A956-3FF18744A2E9
page(s)	983-988
instance of	wds:Q57712572-C934498F-B977-49D0-BCD3-E3A35AA3D81C
instance of	scholarly article
main subject	wds:Q57712572-0AB05D0B-E2AC-43C8-B565-C91A155C3114 wds:Q57712572-DD186F78-9BE4-4C55-8FEE-E3D22F053390
main subject	neuromuscular disease mouth-to-mouth resuscitation
PubMed ID	wds:Q57712572-E63B16D0-98FF-48EB-A197-872B5C3761FE
PubMed ID	http://rdf.ncbi.nlm.nih.gov/pubchem/reference/18974004
PubMed ID	18974004
published in	wds:Q57712572-4E86C739-10A0-4457-8256-E7BEBA0C56CC
published in	Neuromuscular Disorders
issue	wds:Q57712572-080A6154-A3A9-4A7F-BEA2-5F9C41B95CCD
volume	wds:Q57712572-704C1A34-7A54-4505-A1D6-223A0E132F35
issue	12
volume	18
DOI	wds:Q57712572-983A0905-2D1C-473B-B531-356ED857E71E
DOI	http://dx.doi.org/10.1016/J.NMD.2008.09.001
DOI	10.1016/J.NMD.2008.09.001
is about of	https://www.wikidata.org/wiki/Special:EntityData/Q57712572
is cites work of	"Fighting the system": families caring for ventilator-dependent children and adults with complex health care needs at home Ethical challenges in home mechanical ventilation: a secondary analysis How can empirical ethics improve medical practice? Paid carers' experiences of caring for mechanically ventilated children at home: implications for services and training. Decisions Regarding Long-term Ventilation for Children: More Questions than Answers. Extremes, uncertainty, and responsibility across boundaries: facets and challenges of the experience of transition to complex, pediatric home care. (Dis)-Trust in transitioning ventilator-dependent children from hospital to homecare Discussing Benefits and Risks of Tracheostomy: What Physicians Actually Say. Current and emerging treatment strategies for Duchenne muscular dystrophy Risk factors for hospitalizations due to bacterial respiratory tract infections after tracheotomy. Tracheotomy and children with spinal muscular atrophy type 1: ethical considerations in the French context. Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions Home Mechanical Ventilation in Children Quality of life in home-ventilated children and their families. It's not just physical: a qualitative study regarding the illness experiences of people with facioscapulohumeral muscular dystrophy Families with children with medical complexity and self-management of care: a systematic review of the literature Home mechanical ventilation in childhood-onset hereditary neuromuscular diseases: 13 years' experience at a single center in Korea The use of an online support group for neuromuscular disorders: a thematic analysis of message postings. Becoming an expert carer: the process of family carers learning to manage technical health procedures at home. Survey of financial burden of families in the U.S. with children using home mechanical ventilation. A fine balance and a shared learning journey: Exploring healthcare engagement through the experiences of youth with Neuromuscular Disorders.
is cites work of	wds:Q48496778-E805ABAE-156A-4285-9AA6-B917D4FC460A wds:Q48269124-710DB4F5-E0DC-44CF-B08F-53AD9E21F5ED wds:Q47295139-6A6DD2C2-C460-4FC4-BEDF-AECE5ACBBECF wds:Q26741535-E73F0833-9271-4C60-AFC3-D69CDB5F61FA wds:Q36210560-E7C534E1-669D-44DB-99F6-0B6F769C7FF0 wds:Q38864063-0E126B87-FBE8-47CE-B7D4-E9C4CE59674C wds:Q48484610-F3D91C60-1C13-40AF-8209-328BCE567485 wds:Q35231580-BE866B0D-3564-4AE5-B481-6CD6AAFAE3EB wds:Q42600959-778F74F5-C74A-45B1-B346-E9949D2C4ADD wds:Q48411915-D4088A32-C7BB-4F92-9AD2-6F0C0567CB95 wds:Q36613414-572F334A-C376-4B19-B59E-3379A1036E93 wds:Q47662497-D3BE1056-7411-4414-931A-BF4E139D05DE wds:Q47338112-02FCC25F-4A0B-4ED7-B8DE-6389DF946737 wds:Q35136151-01F10E2E-2C8D-48B5-A839-78303A2D1CFF wds:Q38557108-33F357C9-EFD9-443A-8907-D48CC2D545C9 wds:Q40242220-5F6860A3-AC15-45A7-BECB-65F6DC0ED71B wds:Q38560113-704507F2-F38C-499C-B15E-5CC020ACF8DC wds:Q47706994-26C56F06-A86E-432D-9D36-24331C1BB432 wds:Q38240900-CAE4825E-06B8-4009-8517-F6FAD85EA821 wds:Q38558959-F084CCD7-50FE-497A-A3CF-7A523680FBE0 wds:Q47298357-5A97B55D-BDC8-4309-BD0F-3FE0C8E65C66

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