About: The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research

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About: The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research Goto Sponge NotDistinct Permalink

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description	article (en) wetenschappelijk artikel (nl) наукова стаття, опублікована в серпні 2018 (uk) im August 2018 veröffentlichter wissenschaftlicher Artikel (de)
publication date	wds:Q57169594-5214E20F-549D-42F4-BF7C-F40CA2364707
publication date	2018-08-13 00:00:00Z (xsd:dateTime)
language of work or name	wds:Q57169594-E2CE9F5C-C5E5-482C-9B87-097257863A0C
language of work or name	English
exact match	wds:Q57169594-3EE8EA8F-4B3C-47B5-B01B-2827FD508B25
exact match	https://scigraph.springernature.com/pub.10.1186/s12883-018-1118-0
cites work	wds:Q57169594-067C1513-9C34-45DC-BDC3-E4B0310E7C5F wds:Q57169594-0AA7886A-B6BD-44BF-A4AE-CE70BCA18831 wds:Q57169594-100ECC25-3AB8-43B1-A8C2-C487BF8E538A wds:Q57169594-11BC70C6-88DF-43DC-88EE-3D4D17549E72 wds:Q57169594-17FEA0C1-9E45-4695-8FA5-A5B781EC5B7E wds:Q57169594-1A0AD93A-02E5-4F21-8059-D405E9E2E88A wds:Q57169594-2828D932-BC09-474A-9CC4-BCCBB5F78227 wds:Q57169594-30093763-0275-42F7-9D99-F2712D8DE222 wds:Q57169594-31DC6314-E7CA-4EA4-8866-D9A08DB44433 wds:Q57169594-37512771-D351-4D0B-B28A-1B5F4A59CCB1 wds:Q57169594-3AC721A3-AE9C-4DDE-A474-C4207FE7B9DC wds:Q57169594-658541FF-A6A9-4932-9A82-2198C7B27951 wds:Q57169594-66FAE018-FF9F-4A07-95A8-B41097F7D525 wds:Q57169594-678D2B0B-D350-49E5-A1E4-AA58D4AE407A wds:Q57169594-6E43793B-CB00-40EE-A55E-EC06CF5EA1EA wds:Q57169594-969F5207-B5C3-476C-BA92-062A5C704D35 wds:Q57169594-99722E9B-62C9-4362-BFA8-53BAC6E4A237 wds:Q57169594-9F1F0D2A-1BB0-4E94-A02B-67B5489F6109 wds:Q57169594-9F5EBCE3-9995-4AE1-8FDA-48D0665F323B wds:Q57169594-A26449C2-B586-44A5-979A-8336BF733F55 wds:Q57169594-ACABC427-2C25-48BF-8BF2-C5878B31AE66 wds:Q57169594-BF9A0D8B-1067-4F6D-9AB7-DB321985901E wds:Q57169594-C8446518-6A12-4E6D-BF06-4BEFCDD50D66 wds:Q57169594-D5FD4C05-0F17-436D-96A5-5CA1F515F3D1 wds:Q57169594-D88D8C1B-CB29-4398-BBE2-C6EE823B4F31 wds:Q57169594-DC12B8DD-0975-4EDF-B59D-584325C9BA5B wds:Q57169594-FC61CC45-A515-4C81-943B-817057A0B4E5
cites work	Public health triangulation: approach and application to synthesizing data to understand national and local HIV epidemics Prevalence of mental disorders in the Zurich Cohort Study: a twenty year prospective study. The WHO-5 Well-Being Index: a systematic review of the literature Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS. EuroQol--a new facility for the measurement of health-related quality of life EuroQol: the current state of play Multiple sclerosis The Warwick-Edinburgh Mental Well-being Scale (WEMWBS): development and UK validation The Multiple Sclerosis Impact Scale (MSIS-29): a new patient-based outcome measure Negative life events, social support and gender difference in depression: a multinational community survey with data from the ODIN study The dimensional structure of benefit finding in multiple sclerosis and relations with positive and negative adjustment: A longitudinal study. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Outcomes from monitoring of patients on antiretroviral therapy in resource-limited settings with viral load, CD4 cell count, or clinical observation alone: a computer simulation model What physical activity surveillance needs: validity of a single-item questionnaire Patient-reported questionnaires in MS rehabilitation: responsiveness and minimal important difference of the multiple sclerosis questionnaire for physiotherapists (MSQPT). The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS Desirability and expectations of the UK MS Register: views of people with MS. Sensitivity Analysis Without Assumptions A prospective web-based patient-centred interactive study of long-term disabilities, disabilities perception and health-related quality of life in patients with multiple sclerosis in The Netherlands: the Dutch Multiple Sclerosis Study protocol High prevalence of multiple sclerosis in Switzerland Physical disability, anxiety and depression in people with MS: an internet-based survey via the UK MS Register Multiple sclerosis registries in Europe – results of a systematic survey The Swiss Multiple Sclerosis Cohort-Study (SMSC): A Prospective Swiss Wide Investigation of Key Phases in Disease Evolution and New Treatment Options A digitally facilitated citizen-science driven approach accelerates participant recruitment and increases study population diversity Multiple sclerosis: clinical profiling and data collection as prerequisite for personalized medicine approach Quantifying a nonnotifiable disease in the United States: the National Amyotrophic Lateral Sclerosis Registry model The ZInEP Epidemiology Survey: background, design and methods.
author name string	wds:Q57169594-049515CD-5260-4F59-9E93-24BD6FD62E90 wds:Q57169594-2283F6DF-3227-4D3F-8BD6-BB7BAFCCE32B wds:Q57169594-2A174A19-39DF-47FC-80E9-3AB7CF21E06F wds:Q57169594-2D786F1B-ED3A-4388-AE60-EFB28031FE31 wds:Q57169594-37DCA171-43AE-45C0-B98B-FB205225BFB4 wds:Q57169594-76A7C145-677F-43B9-8B7E-974009855C6F wds:Q57169594-81DBFC91-DE86-4BAA-9A5A-C95F004D2B68 wds:Q57169594-969D2690-09F8-44FC-AC72-69AACB8E83A5 wds:Q57169594-EDD73EC7-2BC9-4608-9D87-81DC4BF5E73C wds:Q57169594-FFB78678-EF9C-4005-B62C-B1F20D651244
author name string	Vladeta Ajdacic-Gross Giulio Disanto Jens Kuhle Caroline Pot Pasquale Calabrese Doron Merkler Jürg Kesselring Stephanie Rodgers Nina Steinemann Milo Alan Puhan
rdfs:label	The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research (en) The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research (nl)
skos:prefLabel	The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research (en) The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research (nl)
name	The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research (en) The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research (nl)
author	wds:Q57169594-E7274312-70B1-4773-BDFC-3126F4A4BD23
author	Viktor von Wyl
title	wds:Q57169594-F3960610-58BB-491B-8348-3BC27C280479
title	The Swiss Multiple Sclerosis Registry (SMSR): study protocol of a participatory, nationwide registry to promote epidemiological and patient-centered MS research (en)
page(s)	wds:Q57169594-FC83D8A1-DAAA-4053-A0CD-D85AE4BCD267
page(s)	111
instance of	wds:Q57169594-B2F25C0B-5681-45DD-90CD-44659081284E
instance of	scholarly article
main subject	wds:Q57169594-B4B74D94-94B3-4502-84E7-D96C1314CD14

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