About: Patient-reported quality of life outcomes for children with serious congenital heart defects.

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scientific article published on 09 January 2014

Attributes	Values
rdf:type	Item
description	videnskabelig artikel (da) article científic (ca) articolo scientifico (it) artigo científico (pt) bilimsel makale (tr) vedecký článok (sk) vetenskaplig artikel (sv) vědecký článek (cs) wetenschappelijk artikel (nl) wissenschaftlicher Artikel (de) научни чланак (sr) bài báo khoa học (vi) article scientifique (fr) artículu científicu espublizáu en 2014 (ast) наукова стаття, опублікована в січні 2014 (uk) scientific article published on 09 January 2014 (en) مقالة علمية نشرت في 09 يناير 2014 (ar)
publication date	wds:Q37715987-B9939D38-30C1-445B-9E67-E3B810AADBD2
publication date	2014-01-09 00:00:00Z (xsd:dateTime)
language of work or name	wds:Q37715987-811D80A7-63F6-4E0D-BE5D-F941BF351AF4
language of work or name	English
cites work	wds:Q37715987-19D46BAB-7071-4B27-9215-1D85D9F85A60 wds:Q37715987-1D54E840-EEE0-44BA-9871-798CFF3FF490 wds:Q37715987-1E7706D5-EEB0-4E04-BBAB-AEEA92C30FA4 wds:Q37715987-27C03F1A-B3A8-4582-B17F-E60A8E551976 wds:Q37715987-29782641-604E-49E2-AF7E-C024B176636F wds:Q37715987-314F09E6-1533-4E53-8360-E2FA636439DA wds:Q37715987-317AF6EE-A363-4AD3-A4DA-60238605EAC4 wds:Q37715987-35540916-83C9-4BC7-9059-C6F5C3538F59 wds:Q37715987-355EE66C-B624-485C-B050-532E1B0F5239 wds:Q37715987-3B0F2A0C-CB68-4C65-834D-4CC99C479A8E wds:Q37715987-3D5F3EE7-47EE-4572-A7DA-85E30012450D wds:Q37715987-440CC1F5-862A-4390-BE6F-38FE22FD4BA1 wds:Q37715987-447ACFF2-032B-49CE-BB51-0EEDE857131A wds:Q37715987-4B78BAF8-EDB0-4F34-9CC7-31C324EC1A2E wds:Q37715987-50054836-A3F5-4181-A4EF-091EB813E44A wds:Q37715987-51578F96-1E94-4CC6-8F02-00B5C342E63F wds:Q37715987-5A1BF6C8-FA61-410E-AC97-68536A82C112 wds:Q37715987-664AF7C0-4A78-4551-A669-91CD2D1564B6 wds:Q37715987-7374D909-22B4-4ABA-9975-968598F4F97C wds:Q37715987-747C16E1-6162-421F-8006-11580E1C725C wds:Q37715987-896358B5-B857-4B13-9F4B-CDF05CBB7631 wds:Q37715987-9378FE0D-94B2-4F30-9253-80801EE00C8D wds:Q37715987-9E75BCE5-33BB-45D2-B285-5C79F2D1C2E3 wds:Q37715987-9E92BA43-E1B7-4C1A-8A68-59D90BC2639E wds:Q37715987-A6514FBC-BF17-4B45-98B8-2A16C18D2222 wds:Q37715987-B33683E0-CFA1-4029-9835-DE3065F095AD wds:Q37715987-C12E1453-1933-4937-BF26-475C6F70011E wds:Q37715987-C5E80FD6-1670-4DE7-A4E5-0F71FD03E975 wds:Q37715987-D04D0340-F86E-4B59-9D3B-0936F570CEDF wds:Q37715987-EA339B66-7F3E-4C49-B0EF-28A1387BDAB0 wds:Q37715987-F858AC2F-3C69-4910-A2D6-E23C4D659069 wds:Q37715987-FE5689C5-3AAB-42A2-9503-0CB1588C158F
cites work	Mortality associated with congenital heart defects in the United States: trends and racial disparities, 1979-1997. A review of measures of quality of life for children with chronic illness Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease Proposed changes for nurse education in England (UK) as a result of the Darzi report (DoH, 2008a) Health Quality Care for All--NHS next stage review final report: some initial observations. Current and potential impact of fetal diagnosis on prevalence and spectrum of serious congenital heart disease at term in the UK. British Paediatric Cardiac Association Health-related quality of life across pediatric chronic conditions. The PedsQL as a pediatric patient-reported outcome: reliability and validity of the PedsQL Measurement Model in 25,000 children Shared decision making: really putting patients at the centre of healthcare Statistical inference for a linear function of medians: confidence intervals, hypothesis testing, and sample size requirements. Patient reported outcome measures could help transform healthcare Use of patient-reported outcomes in clinical practice. Quality of life in children with heart disease as perceived by children and parents Parent-child agreement across child health-related quality of life instruments: a review of the literature Temporal variability in birth prevalence of cardiovascular malformations Sports participation and emotional wellbeing in adolescents. Associations between sport and screen-entertainment with mental health problems in 5-year-old children Learning from Bristol: report of the public inquiry into children's heart surgery at Bristol Royal Infirmary 1984-1995. Health-related quality of life in patients with congenitally corrected transposition of the great arteries. A generic measure of Quality of Life for children aged 3-8 years: results of two preliminary studies Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy peers. Quality of life in adults with congenital heart disease Quality of life and cognitive function in Fontan patients, a population-based study. Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory. Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina? Quality-of-life in children and adolescents with cystic fibrosis managed in both regional outreach and cystic fibrosis center settings in Queensland. Functional health status of adolescents after the Fontan procedure -- comparison with their siblings Sinh-arcsinh distributions Ethics, governance and consent in the UK: implications for research into the longer-term outcomes of congenital heart defects. Exploring links between the concepts of Quality of Life and resilience
author name string	wds:Q37715987-70BC0846-C959-470E-9405-39F40ED9EC97 wds:Q37715987-7CE01A4F-6AC3-4C42-8FAE-6D9DC33D0ADB wds:Q37715987-89EE7B79-4B04-415C-8EE9-6A096194CEB6 wds:Q37715987-DC43EB21-DA1D-4C81-9B3B-3876DB98C061
author name string	Catherine Bull Angie Wade Christopher Wren UK Collaborative Study of Congenital Heart Defects (UKCSCHD)
rdfs:label	Patient-reported quality of life outcomes for children with serious congenital heart defects. (en) Patient-reported quality of life outcomes for children with serious congenital heart defects. (nl) Patient-reported quality of life outcomes for children with serious congenital heart defects. (ast)
skos:prefLabel	Patient-reported quality of life outcomes for children with serious congenital heart defects. (en) Patient-reported quality of life outcomes for children with serious congenital heart defects. (nl) Patient-reported quality of life outcomes for children with serious congenital heart defects. (ast)

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