About: "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research

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About: "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research Goto Sponge NotDistinct Permalink

An Entity of Type : wikibase:Item, within Data Space : wikidata.demo.openlinksw.com associated with source document(s)

Attributes	Values
rdf:type	Item
description	wetenschappelijk artikel (nl) наукова стаття, опублікована в червні 2018 (uk) article scientifique publié en 2018 (fr) im Juni 2018 veröffentlichter wissenschaftlicher Artikel (de)
publication date	wds:Q56541575-B83B9FE8-4976-4A93-A309-C2FA15977ED8
publication date	2018-06-11 00:00:00Z (xsd:dateTime)
language of work or name	wds:Q56541575-30D180FA-4E5B-4818-808F-0B2B61A9201D
language of work or name	English
exact match	wds:Q56541575-A817BA93-0669-4CCF-A744-235B3F7AAB97
exact match	https://scigraph.springernature.com/pub.10.1038/s41436-018-0032-6
cites work	wds:Q56541575-1B37B5F9-C758-4754-802B-87B170608497 wds:Q56541575-1F935FA9-3E53-4D8B-BC6E-92716F4ED287 wds:Q56541575-24B699FE-0F63-4591-9904-94F6957ED476 wds:Q56541575-24DC852C-8298-4010-9A3B-BDE5A94A0467 wds:Q56541575-2CCAEA66-F9DC-4D85-A8E2-33F1C527066C wds:Q56541575-4B109D75-81E9-4660-842E-4939A32BE4B6 wds:Q56541575-5076B4B2-DC46-40F6-A0EA-3E62802D6ABF wds:Q56541575-60119215-92DD-4388-B6C8-A8CF0066EE12 wds:Q56541575-682D56F4-E604-48F8-8C82-6D4238DAE272 wds:Q56541575-68755C53-F1F7-4E5B-93D8-7EC0D01DC9FE wds:Q56541575-73876403-4824-4B87-B2ED-5E626EA6EAB8 wds:Q56541575-863D2787-4DA2-43F1-8113-AC5BB0417948 wds:Q56541575-8825B136-0EC2-4FBC-8535-577FEA9E6042 wds:Q56541575-97DEFE4B-AD6F-4013-81F8-90DDF09DE1BF wds:Q56541575-9AD4EF49-98F6-46AE-8500-9EDC49208175 wds:Q56541575-A43A5E5A-E526-4CD7-9EFD-F510188625B5 wds:Q56541575-A8E09FBE-5E3C-4208-BB07-72F5D7C4C7DD wds:Q56541575-A994593B-C895-4084-B5C3-A19D4587BAAF wds:Q56541575-ACBCDB93-273B-4EDD-86F3-20A2D75F174B wds:Q56541575-C835A5B2-0E17-4480-A588-0B35188977BA wds:Q56541575-D0C840A8-D6DF-4778-A5AF-5EDBF339D6AE wds:Q56541575-D8016BE3-96B3-46B6-8C57-C521DC3D603A wds:Q56541575-D9E7DE60-0B5F-4913-8F56-176089135799 wds:Q56541575-DB29F875-7C2D-4017-B887-70D142DA1F22 wds:Q56541575-FB737871-2972-4C96-96E1-A2DED667C7EC
cites work	Public opinion about the importance of privacy in biobank research The Havasupai Indian tribe case--lessons for research involving stored biologic samples. Getting the focus and the group: enhancing analytical rigor in focus group research Identifiability in biobanks: models, measures, and mitigation strategies Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders Patients' views on identifiability of samples and informed consent for genetic research Storage and use of residual newborn screening blood spots: a public policy emergency A survey of patient perspectives on the research use of health information and biospecimens Perspectives on barriers and facilitators to minority recruitment for clinical trials among cancer center leaders, investigators, research staff, and referring clinicians: enhancing minority participation in clinical trials (EMPaCT). Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US Federal Policy for the Protection of Human Subjects. Final rule Confronting Biospecimen Exceptionalism in Proposed Revisions to the Common Rule The cultural biography of things: commoditization as process The Precision Medicine Initiative's All of Us Research Program: an agenda for research on its ethical, legal, and social issues Public trust in health information sharing: implications for biobanking and electronic health record systems Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking Bad copies. How popular media represent cloning as an ethical problem. A Flawed Revision of the Common Rule. Bad Copies: How Popular Media Represent Cloning as an Ethical Problem Blood and bioidentity: ideas about self, boundaries and risk among blood donors and people living with hepatitis C Metaphors matter: from biobank to a library of medical information
author name string	wds:Q56541575-7605BF61-3894-4753-BD52-717B2063AF50 wds:Q56541575-83651EDA-67B9-4D73-B62A-0ABBBCA5D8F8 wds:Q56541575-A9E6A65A-1F94-4441-A2BA-785F04680732
author name string	Kelly E Ormond Sandra S-J Lee Stephanie A Kraft
rdfs:label	"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research (en) "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research (nl)
skos:prefLabel	"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research (en) "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research (nl)
name	"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research (en) "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research (nl)
author	wds:Q56541575-2C10B966-3DA6-461C-9179-EB07190205F6 wds:Q56541575-803D7E3B-B542-468C-822B-DC960626279E wds:Q56541575-840F3F20-865C-4EF7-A116-BA3DA01FD353 wds:Q56541575-E8CDF76E-A240-43E4-93CE-E915BE346397 wds:Q56541575-F0246540-A2AE-4E7C-9C56-26FB0C6FB114
author	Mildred Cho Benjamin S Wilfond David Magnus Katie Gillespie Nina Varsava
title	wds:Q56541575-E299E327-1DDC-419D-A678-D624903B70F1
title	"I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research (en)
page(s)	wds:Q56541575-0239E1D2-427E-4F05-A7A9-F2342F653B30
page(s)	107-113
instance of	wds:Q56541575-41C98EEB-9E95-491E-8D0A-5519222A112F
instance of	scholarly article
PubMed ID	wds:Q56541575-36A369E6-3561-4333-A199-3962589DD8CF
PubMed ID	http://rdf.ncbi.nlm.nih.gov/pubchem/reference/29887604
PubMed ID	29887604
published in	wds:Q56541575-582BCC80-C11A-414E-9021-833FD25460C6
published in	Genetics in Medicine
issue	wds:Q56541575-2467A31F-0E28-4BF2-AE75-BCD198DDD768
volume	wds:Q56541575-DE723860-ED8A-4584-894E-7D4B1198D1CC
issue	1
volume	21
DOI	wds:Q56541575-7D7E19F8-AE87-41DD-AE64-627222B78495
DOI	http://dx.doi.org/10.1038/S41436-018-0032-6

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